The Spooniverse
This platform provides the infrastructure to help patients and their caregivers access what they need.
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Access the Directory
Unlock thousands of resources curated by our patient community.
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Everything You Need in One Place
The Spooniverse Directory is a searchable directory of healthcare resources, created by patients who understand the challenges of complex chronic health conditions. Think of it as your personal healthcare library, organizing everything from support groups to clinical trials in one easy-to-navigate space.
The name "spooniverse" is a portmanteau of spoonie, widely used in chronic illness communities to describe patients with limited daily energy, and universe, the comprehensive digital landscape for healthcare navigation.
Clinical Trials
Find relevant clinical trials matched to your condition and location
Patient Communities
Connect with others who understand your journey
Research Opportunities
Participate in studies that advance medical knowledge
Financial Aid
Discover grants, assistance programs, and support resources
Supporting Patient Communities Worldwide
Help Us Keep This Platform Free
The Spooniverse is a labor of love, maintained by volunteers. Your donation helps us keep the lights on and the resources flowing.
Every contribution, big or small, makes a difference in our community